Volume 4, Issue 2, December 2018, Page: 26-34
Mental Health and HIV/AIDS: A Thematic Analysis of Communication and Support for People Living with HIV/AIDS in an Online Support Group
José Daniel Gil-Fortoul Bucheli, School of Psychology, Catholic Pontifical University of Ecuador, Ambato, Ecuador
Received: Sep. 11, 2018;       Accepted: Sep. 20, 2018;       Published: Oct. 17, 2018
DOI: 10.11648/j.ijhpebs.20180402.11      View  721      Downloads  140
Qualitative research on HIV/AIDS and the use of online support groups has suggested that participants benefit from them in terms of empowerment and emotional support. However there is almost no information available on the specific topic of mental health and concerns that people living with HIV/AIDS have around the topic, and what the role is of forums when participants look for orientation and relief from psychological distress. The aim of this study was to explore trends in discussion about mental health in online support groups and to try to identify usual concerns and strategies that members share in the forums when they address the matter of psychological distress, including mental disorders such as depression and anxiety. Thematic analysis of 701 messages posted by 220 members in a forum about mental health and HIV/AIDS revealed three themes: ‘Therapy almighty?’, ‘Swallow the pill or not’, and ‘Being lonely is not helping’. The findings suggest that participants tend to idealise therapy, medicine and companionship, which are the three main alternatives of solution to problems discussed in the online forum. This idealisation might be due to the uncertainties and burdens inherent to HIV/AIDS, and the need for hope in definitive solutions to the multiple problems this population can face. While other studies have considered online support groups as a source of relief themselves, our findings suggests that participants use them as a mean to mainly look for answers, obtaining only references to other resources that could actually have those desired answers.
HIV/AIDS, Idealisation, Therapy, Medicine, Companionship
To cite this article
José Daniel Gil-Fortoul Bucheli, Mental Health and HIV/AIDS: A Thematic Analysis of Communication and Support for People Living with HIV/AIDS in an Online Support Group, International Journal of HIV/AIDS Prevention, Education and Behavioural Science. Vol. 4, No. 2, 2018, pp. 26-34. doi: 10.11648/j.ijhpebs.20180402.11
Copyright © 2018 Authors retain the copyright of this article.
This article is an open access article distributed under the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/) which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
"Cichocki, M. (2009). Living with HIV: A patient's guide. Jefferson, NC: McFarland &.
Collins, P. Y., Holman, A. R., Freeman, M. C., & Patel, V. (2006). What is the relevance of mental health to HIV/AIDS care and treatment programs in developing countries? A systematic review. Aids, 20(12), 1571-1582. doi:10.1097/01.aids.0000238402.70379.d4.
Cohen, M. A., & Gorman, J. M. (2008). Comprehensive textbook of AIDS psychiatry. Oxford: Oxford University Press.
Basu, S.; Chwastiak, L. A. & Bruce, R. D., 2005. Clinical Management of Depression and Anxiety in HIV-Infected Adults. AIDS 19(18), 2057-2067. Retrieved from http://www.medscape.com/viewarticle/517764.
NAT (2010). Psychological support for people living with HIV. Retrieved from http://www.nat.org.uk/media/files/publications/july-2010-psychological-support-for-plhiv.pdf.
Thom, R. (2009). Common mental disorders in people living with HIV/AIDS. Southern African Journal of HIV Medicine.
Marwick, K. & Kaaya, S. F. (2010). Prevalence of depression and anxiety disorders in HIV-positive outpatients in rural Tanzania. AIDS Care, 22(4):415-419. doi: 10.1080/09540120903253981.
Basavaraj, K. H.; Navya, M. A. & Rashmi, R. (2010). Quality of life in HIV/AIDS. Indian Journal of Sexual Transmission Diseases 31(2): 75–80. doi: 10.4103/0253-7184.74971.
Baumeister, R. F. & Leary, M. R. (1995). The Need to Belong: Desire for Interpersonal Attachments as a Fundamental Human Motivation. Psychological Bulletin 111(3), 497-529. Retrieved from http://persweb.wabash.edu/facstaff/hortonr/articles%20for%20class/baumeister%20and%20leary.pdf.
Brewer, M. B. (2000). The Need to Belong: The Social Self: On Being the Same and Different at the Same Time. In E. Tory Higgins & A. W. Kruglanski (Ed.), Motivational Science. Social and Personality Perspectives (pp. 50-59). Washington: Psychology Press.
Rubenstein, D. & Sorrentino, D. (2008). Psychotherapy with HIV/AIDS patients: assessment and treatment plan development. American Journal of Psychotherapy, 62(4), 365-375. Retrieved from http://www.kean.edu/~psych/doc/psychotherapy%20with%20hivaids.pdf.
Safren, S. A., O'cleirigh, C., Tan, J. Y., Raminani, S. R., Reilly, L. C., Otto, M. W., & Mayer, K. H. (2009). A randomized controlled trial of cognitive behavioral therapy for adherence and depression (CBT-AD) in HIV-infected individuals. Health Psychology, 28(1), 1-10. doi:10.1037/a0012715.
Cardoso, G. S. (2013). Stress Management for HIV/AIDS patients through CBT. Revista Brasileira de Terapias Cognitivas, 9(1). doi:10.5935/1808-5687.20130005.
Mo, P. K. H. & Coulson, N. S. (2008). Exploring the Communication of Social Support within Virtual Communities: A Content Analysis of Messages Posted to an Online HIV/AIDS Support Group. Cyberpsychology & Behavior 11(3), 371-374. doi:10.1177/1359105309348808.
Abramowitz, S., Koenig, L. J., Chandwani, S., Orban, L., Stein, R., Lagrange, R., & Barnes, W. (2009). Characterizing Social Support: Global and Specific Social Support Experiences of HIV-Infected Youth. AIDS Patient Care and STDs, 23(5), 323-330. doi:10.1089/apc.2008.0194.
Coursaris, C. K., & Liu, M. (2009). An analysis of social support exchanges in online HIV/AIDS self-help groups. Computers in Human Behavior, 25(4), 911-918. doi:10.1016/j.chb.2009.03.006.
Mo, P. K., & Coulson, N. S. (2010). Living with HIV/AIDS and Use of Online Support Groups. Journal of Health Psychology, 15(3), 339-350.
Mo, P. K., & Coulson, N. S. (2012). Developing a model for online support group use, empowering processes and psychosocial outcomes for individuals living with HIV/AIDS. Psychology & Health, 27(4), 445-459. doi:10.1080/08870446.2011.592981.
Mo, P. K., & Coulson, N. S. (2013). Are online support groups always beneficial? A qualitative exploration of the empowering and disempowering processes of participation within HIV/AIDS-related online support groups. International Journal of Nursing Studies, 51(7), 983-993. doi:10.1016/j.ijnurstu.2013.11.006.
Mo, P. K., & Coulson, N. S. (2013). Online support group use and psychological health for individuals living with HIV/AIDS. Patient Education and Counseling, 93(3), 426-432. doi:10.1016/j.pec.2013.04.004.
POZ - Health, Life and HIV (2016). Retrieved from https://www.poz.com/.
Sandelowski, M. (1995). Sample size in qualitative research. Research in Nursing & Health, 18, 179-183. doi: 10.1002/nur.4770180211.
Fugard, J. B. A. & Potts, H. W. W. (2015). Supporting thinking on sample sizes for thematic analyses: a quantitative tool. International Journal of Social Research Methodology, 18(6), 669-684. http://dx.doi.org/10.1080/13645579.2015.1005453.
British Psychological Association (2013). Retrieved from http://www.bps.org.uk/sites/default/files/documents/code_of_human_research_ethics.pdf.
Clarke, V., & Braun, V. (2014). Thematic Analysis. Encyclopedia of Critical Psychology, 1947-1952.
Brashers, D. E.; Neidig, J. L.; Russel, J. A.; Cardillo, L. W.; Haas, S. M.; Dobbs, L. K.; Garland, M.; McCartney, B. & Nemeth, S. (2009). The Medical, Personal, and Social Causes of Uncertainty in HIV Illness. Issues in Mental Health Nursing, 24(5):497-522. doi: 10.1080/01612840305292.
Daaleman, T. P. (2002). Spirituality and Chronic Illness. Jama, 288(20), 2541. doi:10.1001/jama.288.20.2541-jlt1127-3-3.
Büssing, A., Balzat, H., & Heusser, P. (2010). Spiritual needs of patients with chronic pain diseases and cancer. European Journal of Integrative Medicine, 2(4), 189-190. doi:10.1016/j.eujim.2010.09.038.
Nixon, A., & Narayanasamy, A. (2010). The spiritual needs of neuro-oncology patients from patients’ perspective. Journal of Clinical Nursing.doi:10.1111/j.1365-2702.2009.03112.x.
Sartore , A. C.; Alves, S. & Herth, K. (2011). Assessment of hope in patients with chronic illness and their family or caregivers. Acta Paul Enferm, 24(3), 354-358. Retrieved from http://www.scielo.br/pdf/ape/v24n3/en_08.pdf.
Villero, O. O., & Burke, N. J. (2013). Beyond Coping: Spirituality and Filipina Transnationals with Experience of Breast Cancer. Chronic Illness, Spirituality, and Healing, 65-84. doi:10.1057/9781137348456_4.
Stoltzfus, M. J., & Green, R. (2013). Spirituality, Chronic Illness, and Healing: Unique Challenges and Opportunities. Chronic Illness, Spirituality, and Healing, 15-45. doi:10.1057/9781137348456_2.
Vogel, D.; Wester, S. R. & Larson, L. M. (2007). Avoidance of Counseling: Psychological Factors That Inhibit Seeking Help. Journal of Counseling & Development, 85, 410-421. Retrieved from http://public.psych.iastate.edu/lmlarson/7.pdf.
Todd, A. M., Ekoru, J., Kalyango, K., Levin, J. N. & Odeke. (2008). Good adherence to HAART and improved survival in a community HIV/AIDS treatment and care programme: The experience of The AIDS Support Organization (TASO), Kampala, Uganda. BMC Health Services Research.
Loeliger, K. B.; Niccolai, L. M.; Mtungwa, L. N.; Moll, A.; Shenoi, S. V. (2016). Antiretroviral therapy initiation and adherence in rural South Africa: community health workers' perspectives on barriers and facilitators. Aids Care-Psychological and Socio-Medical Aspects of AIDS/HIV, 28(8), 982-993. doi: 10.1080/09540121.2016.1164292.
Collins, P. Y.; Kondos, L.; Pillai, A.; Joestl, S. S. & Frohlich J. (2016). Passive Suicidal Ideation and Community Mental Health Resources in South Africa. Community Mental Health Journal 52(5), 541-550. doi: 10.1007/s10597-016-0003-9.
Heywood, W. & Lyons, A. (2016). HIV and Elevated Mental Health Problems: Diagnostic, Treatment, and Risk Patterns for Symptoms of Depression, Anxiety, and Stress in a National Community-Based Cohort of Gay Men Living with HIV. Aids and Behavior 20(8), 1632-1645. doi: 10.1007/s10461-016-1324-y.
Attard, A., & Coulson, N. S. (2012). A thematic analysis of patient communication in Parkinson’s disease online support group discussion forums. Computers in Human Behavior, 28(2), 500-506. doi:10.1016/j.chb.2011.10.022.
Fehr, B., & Russell, J. A. (1991). The concept of love viewed from a prototype perspective. Journal of Personality and Social Psychology, 60(3), 425-438. doi:10.1037/0022-3514.60.3.425.
Catlin, E. A. (2002). Should Physicians Address Patients' Spiritual Needs? Jama, 287(19), 2504. doi:10.1001/jama.287.19.2502.
Büssing, A., Janko, A., Baumann, K., Hvidt, N. C., & Kopf, A. (2013). Spiritual Needs among Patients with Chronic Pain Diseases and Cancer Living in a Secular Society. Pain Medicine, 14(9), 1362-1373. doi:10.1111/pme.12198.
Büssing, A., & Koenig, H. G. (2010). Spiritual Needs of Patients with Chronic Diseases. Religions, 1(1), 18-27. doi:10.3390/rel1010018.
Hinton, D., & Kirk, S. (2016). Living with uncertainty and hope: A qualitative study exploring parents experiences of living with childhood multiple sclerosis. Chronic Illness. doi:10.1177/1742395316664959. "
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